Activist
When Scott’s son, Eli, was diagnosed with a rare brain disease, Scott immediately changed lanes from corporate lawyer to self-taught scientist by forming Believe in a Cure, a global nonprofit relentlessly working to cure FOXG1 syndrome. Believe in a Cure is also a grant-making organization providing support to the wider rare disease community.
Along Scott’s journey, he learned about the challenging experiences many rare disease families face – especially the emotional and psychological burdens they carry. So he formed BelieveWell, a free mental health platform for rare disease caregivers to receive critical support.
LECTURER
Since the publication of his book, The Power of Citizenship, Scott has lectured nationally on the themes of public service, active citizenship, and civic obligation. He is an adjunct lecturer at the University of Pennsylvania’s Institute for Public Service, where he teaches about the American presidency.
PHILANTHROPY
Scott has served on several nonprofit boards for many years, including the Board of Advisors at the John F. Kennedy Library Foundation, and the College Council of SUNY College at Old Westbury.
GLOBAL ADVOCATE
Scott meets with government, corporate, academic and nonprofit leaders to raise awareness about issues confronting people with disabilities while also advocating for policy changes.